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Privacy of Genetic Information

From the National Cancer Institute (NCI):

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  • “…People considering genetic testing must understand that their results may become known to other people or organizations that have legitimate, legal access to their medical records, such as their insurance company or employer, if their employer provides the patient’s health insurance as a benefit. However, legal protections are in place to prevent genetic discrimination, which would occur if insurance companies or employers were to treat people differently because they have a gene mutation that increases their risk of a disease such as cancer or because they have a strong family history of a disease such as cancer.

  • "In 2008, the Genetic Information Non-discrimination Act (GINA) became federal law for all U.S. residents. GINA prohibits discrimination based on genetic information in determining health insurance eligibility or rates and suitability for employment.” 

 

There are exceptions to who is covered by this law. Here is a good summary of the law and exceptions: https://www.facingourrisk.org/privacy-policy-legal/laws-protections/privacy-nondiscrimination/GINA/overview

 

Please note: Some individuals may not qualify for life insurance due to the results of their genetic testing.

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Non-Discrimination Law Resources:

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